Max Nunn Update

[nylyon-(Admin) 8,480]

Here's the latest update on Max:

Transplant day +37

Posted 51 minutes ago

Max is still showing signs of improvement at home, He has had nightmares lately and Jodie and I have talked with his doctor and agreed to take him off the anti-depressants and he has become a little more angered since doing so but we are hopeful that will go away and it appears it may be. He will be getting his MRI on the 4th coming up and his lumbar puncture and line removal on the 8th, after that it is decided by us all to start radiation for 6 to 8 weeks, the first couple under sedation for simulation and then possibly he can try it without, He will go 5 days a week for the treatment. he will then get new scans after about a month and we will most likely move on to another option that was brought to us by the doctors which will include weekly treatments of anti-angiogenic medicine designed to stop the formation of new blood vessels to any left over cancer cells or new ones. he would also start taking Celebrex a arthritis medication that has potential to stop new cancer growths. This drug will require monitoring his heart as there has been news of it causing heart damage. Tetracycline is another medication that has been suggested in his treatment and it is an antibiotic that has shown some positive results in warding of cancer. he would also take Topotecan which is a chemotherapy agent that would come with the possibilities of Diarrhea, Low blood counts, Susceptibility to infection, but I believe it will be a low preventative dose which should not come with many side effects. He would also take the cytoxin chemo which he has had in the past. All of these drugs would be given weekly I think and he would go to clinic one time a week for counts. He could also get his port removed after radiation but would then need to get poked for blood draws but he would probably prefer that, his cumiden level is still not high enough so the lovenox shots at night have to keep going till next week. His Birthday is coming up on the sixth and he is excited. Perhaps we can have an outside Birthday party for him to be able to go sledding with some friends and not be in close contact with anyone. The Doc's and social workers are also working out a plan for our family and the Hogan's (Brendan's family) to be able to go to a hockey game soon to see the Griffins. Brendan is currently getting his radiation done and we think of him daily, Max is similar to Brendan in how they both keep taking all this nasty treatment and yet they both still manage there smiles that we all love so much. Our family has merged with several other families that we have met thru Devos and it really means a lot to be able to talk to others going thru the same experience. If you are a friend of Max's on facebook you are probably aware of the constant shouting I do in posts to STOP CHILDHOOD cANCER daily. It is the only way to get the frustration out, more awareness has to be made, there are only two things standing in the way of a cure for children with cancer, Money and Awareness. Right now our family can only give one of them, however we will be participating in the upcoming Relay for life to help raise money. I do not like to see Max as a poster child for children's cancer and I do not think he really enjoys his celebrity status very much either and would rather just be a kid. But he has developed a large following and we will have to keep using Team Max to raise awareness and any funds for research. My apologies for any missed messages or for failing to reply to some but there are many at times and some just slip thru the cracks. We thank you all for the letters and cards and gifts to Max. Jodie has the shirt order completed and they should be in soon and will get shipped out. If we have missed anyone and yours does not arrive please do not hesitate to send us an email to smile@tomnunn.com . But please no more new request's as it has been to much extra work on Jodie and her Mom. While we love seeing the orange Team Max shirts out there the last order will be the last. I am slowly working on a new video to give thanks to all the Nurses and Doctors at the hospital that all our families have grown to love for their treatment and dedication to our children. Max and I got a lot of picture of staff while inpatient as well as Reeys (sorry about spelling) took some as well but I could still use more pictures of either just the staff as well as pictures of the staff with kids, anyone that could email any to me would be greatly appreciated. For anyone interested in bidding on a picture by Max it is on ebay and 100% of the auction goes for cancer funding. 50% to childhood brain tumor research and 50% to the Relay for life, just type in (Art Work By the Great Max Nunn) or click the link below. it is currently at 61 dollars. (sorry Aunt Robbie and Cammie I am gonna try to get more people bidding against ya's. Thank you all for your continued support of Max and for making CHILDHOOD cANCER with a little "c" become more aware.

[perry 82]

thanks for the update karl.

[leichty 0]

Thanks for the update, Iv'e been praying for the little guy...