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Bill D

Pituitary Tumor

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Bill D

About 2 months ago I was diagnosed with a 6 mm prolactanoma, which is a tumor on my pituitary gland.  Primary symptom is very low testosterone.   Any one here have any experience with this?  I'm seeing a nuroendocrinologist in May.  Standard treatment is medication to shrink the tumor.  Surgery if that doesn't work. I appreciate any insight others may have.   Thanks  

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rjg854

Will be praying for you, Bill :pray:

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SylvanLakeWH
Posted (edited)

Sorry to hear. Prayers for you, your family and your care team.

Edited by SylvanLakeWH
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Bill D
36 minutes ago, rjg854 said:

Will be praying for you, Bill :pray:

Thank you very much.  Thankfully it's a very slow growing tumor and surprisingly common.  Many people don't even know they have one.  Because of her psychological training, my wife insisted on a MRI of my brain, if she hadn't I don't think we would have caught it until it was much bigger and causing additional symptoms.

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squonk

I had a enlarged parathyroid gland (Tumor) back in 2019-/20 during Covid. Raised my calcium level to dangerous levels. Was a fun time trying to get it taken care of with everything going on. But I had this great  woman surgeon and it was a piece of cake to get it removed. Turned out it was benign. As a reward I got a great fresh scar on my neck for my retirement pic from BOCES! 

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953 nut

Bill, I too will keep you and the medical team in my prayers.        :eusa-pray:

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parsonsponyz

Thoughts and prayers are with you.

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kpinnc

My family will keep you and your family in our prayers. 

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johnnymag3

Praying for you .......Im close by if you need anything Bill...   :( 

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Fj40z
On 4/24/2026 at 12:25 PM, Bill D said:

About 2 months ago I was diagnosed with a 6 mm prolactanoma, which is a tumor on my pituitary gland.  Primary symptom is very low testosterone.   Any one here have any experience with this?  I'm seeing a nuroendocrinologist in May.  Standard treatment is medication to shrink the tumor.  Surgery if that doesn't work. I appreciate any insight others may have.   Thanks  

 

I have this very thing. I was diagnosed in 2006 with an prolactinoma and have been on medicine ever since. My tumor had grown so big it was pressing on my optic nerves making my peripheral vision go away, that’s what led me to go to the Dr. I have had good success utilizing my medicine and testosterone replacement therapy. 

I had to give the medicine a try first, then they checked my prolactin levels and they had dropped significantly. If they hadn’t, would have had to gone the surgery route. Thank the lord I didn’t. I’ll be glad to talk to you about my experiences. If you want to PM me your number or I’ll send you mine. 

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Bill D
11 minutes ago, Fj40z said:

I’ll be glad to talk to you about my experiences. If you want to PM me your number or I’ll send you mine. 

Thanks!  Will do.  I'll probably catch up with you over the weekend.   

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Fj40z
18 minutes ago, Bill D said:

Thanks!  Will do.  I'll probably catch up with you over the weekend.   

 

Please do, I’d be glad to help. 

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